Huntington’s Disease and me

This month has been insanely busy and whatnot. So i have been like sleeping crazy like 2 weeks 12 hours and 2 weeks like 4 hours and this is the worst thing to be about my HD. i Have gotten new medicines and whatnot. I have gotten ingrezza for my movements and whatnot and it…

I hsve a pretty good week so far. I literally on Wednesday my wrist stared to feel better. I did therapy. Workout, cleaning snd laundry and today doing a little diamond painting. And did dishes anda madee dinner the past few nights well . Tomorrow i have pt and cognitive therapies. As well see my…

8hey guys soo it been pretty crazily! I have started my pt and cognitive therapy every week both of them for 12 weeks. But then my pt aaid i walk bad on my. Ankle which is whhy there is pain in my ankle and i have to wear a brace and then a day later…

I had been working out with my mom everyday during the week for 3 weeks. I also had 4 appointments during that time frame and i have been so tired i literally just have been doing like diamond painting and reading a ton. I had a pain dr appointment and they upped the medicine to…

This past week was a whirlwind. [Read ⁷more]I had a great long weekend with m y Aunt Jeanna and Cousin Lyric. It was so much fun but it was also super busy. After that, I crashed hard and did nothing but sleep for days. It took us so long to get to where we were…

I have felt really bad symptoms the past few weeks. I have not been able to do anything very much . And i have felt unmotivated about everything. I do have a few referrals out i have physical, cognitive, pain, urology, and phycologist. I am hoping they can all help me feel better. the pain…

So honestly, it has been pretty crazily insane couple of days but I was super sick all last week like throwing up just felt sick as shit. And friday was the only day that it did feel better but i was busy toyto get caught on stuff around the house and whatnot. Then i did…

so my insurance didn’t accept my risperadone at 4 pills again so I had the dr to up the mg and less pills a day. i dooo not see how they can dictate the amount of pills . i had like every symptom ever. I had super bad pain , no sleep because of the…

This week has been a bad couple weeks. I have not gotten more than 4 hours of sleep this whole week every night for 2 weeks now. I had a panic attack last night, i got super scared because | was scared to be home alone. Seriously it took me forever to relax and sleep…

soo my legs hurt too bad last night and I only got 3 hours of sleep And i am exhausted and i anm not able to do anything fun today.. i did work out with Nicole today and. I do feel better but too tired li have been doing nothing but drinking tons of coffee…